Research

The charity Invest in ME (IIME) has been set up with the objectives of making a change in how ME is treated in the press and by the health department.

Their website also has a library section which contains a wealth of information, including an article about the Canadian Guidelines.

They have recently started a project to create a book, to be called LOST VOICES.

The name ‘Lost Voices’ refers both to the fact that people who are severely ill with ME are generally not in a position to make themselves heard, and also to the way that the  prejudiced denial of ME - as an ‘aberrant belief’ rather than a devastating physical illness – has meant that often others are incapable of actually hearing and seeing what is being said and shown - our voices drop into a void.

The book will be an A4 landscape size with a laminated card cover and will be largely in colour.

A travelling exhibition will be put together, of pages and work from the book, to be shown primarily in hospitals. Art has the power to move people, and combined with documentation may bring the situation more vividly to life.

If you'd like to contribute to the project, or find out more, take a look on their website.

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