YP's links

 

 ...who specifically offer help, support and information for all the children and young people (YPs) who are suffering from ME, CFS and Fibromyalgia

....also for their parents, other family members, carers and professionals.

.....and sufferers who are parents themselves or are thinking of becoming parents.

Our thanks to all for providing information and links.

Action for ME

http://www.afme.org.uk/



Action for Me is a national uk group suitable for adult and young people

The ME Association

http://www.meassociation.org.uk/



The ME Association is a national uk group suitable for adult and young people

 AYME

http://www.ayme.org.uk/



AYME is a national uk group who help

children and young people



BRAME

http://www.brame.org/

Brame is a national uk group who help who help

adult, young people and families

 CFIDS

http://www.cfids.org/

CFIDS is an American group who help adult, young people and families

They also have a lot of information on research.

M E / CFS Parents

http://www.mecfsparents.org.uk/

A community for parents, parents-to-be and people considering Parenthood who suffer from ME/CFS.

Deciding about having a child, going through pregnancy and parenting are all difficult even when you don't suffer from ME/CFS.

This site aims to offer extra support to those going through these life stages.

A community for mums and dads-to-be, and existing parents, who suffer from ME/CFS can be found here

Other Support Groups for Parents

http://www.me-ed.co.uk/support.htm#national
Disability, Pregnancy & Parenthood international provides a personal and confidential enquiry service and produces a number of information sheets.
The Disabled parents network has a contact register and can put parents and would-be parents in touch with each other.
The Association for Post-Natal Illness provides information and telephone counselling from volunteers with personal experience of post- natal illness
Home Start offers support to stressed families with children under five. You can have a dedicated volunteer 'buddy mum' to visit you in your own home.
• General information for all parents (not specific to ME) can be found on the Government parents web site, including educational information, guidance on health and welfare issues, bullying and a link to the DSS website for details on benefits.

Parents whose Children Have ME :

http://www.me-ed.co.uk/support.htm#national

Click here to visit a UK discussion forum, in association with Young Action Online and the Thymes Trust, for parents whose children have ME.

CFS-P - international group for parents whose children have ME.

The National Association for the Education of Sick Children (not specific to ME).

Contact A Family is a UK based registered charity for families with disabled children (not specific to ME).

Tymes Trust

http://www.tymestrust.org/

This site provides information for Young People and their parents they also have a lot of information on CFS/ME and Education.

Don't forget about the regional support groups.

These groups will offer support to YP's and their parents too.

 Do you know of another site we should link to?

We will add more websites and information as we upgrade our site

If you know of anything you think would be useful

Please contact webquery@clwydme.net